List of rare bleeding disorders?

Bleeding is just a normal thing, right? Especially when you’re trying to shave those hairy legs in the shower or open that stubborn jar of pickles. But for some people, bleeding isn’t so simple. There are rare bleeding disorders out there that most people haven’t even heard of! Let’s take a look at them-

Von Willebrand Disease- Just try to say that five times without messing up!

Von Wille…villen..Walmart? Nevermind, we’ll stick with VWD – this disorder is actually quite common and affects around 1% of the world’s population (that’s over 78 million people!) And yet, hardly anyone has ever heard of it.

But basically what happens with VWD is your blood doesn’t clot properly because there’s something wrong with your Von Willebrand factor (VWF). This can lead to all sorts of issues such as prolonged nosebleeds, heavy periods (sorry fellas) , bruises galore, and even gastrointestinal bleeds if things get really serious.

There are different types of VWD depending on how severe it is which makes things more complicated than they need to be. But let’s not worry about that too much because these other disorders have way crazier names!

DIC Disorder- Not just an acronym for angry mothers-in-law.

You know what else has ridiculous acronyms? Physician Orders For Life-Sustaining Treatment (POLST) forms but anyways…

DIC stands for Disseminated Intravascular Coagulation and the basic idea here is not enough blood clots when needed combined with too many unnecessary ones-can you imagine having both happen at once?

That might sound like an oxymoron but bear witness; The trouble starts Here:

Let us assume you have been involved in an accident-A really bad one-and your brain does not function so well now.However, the body is on overdrive trying to repair it – this leads to tiny blood vessels all over your body clotting (a lot)

And then… you start bleeding A LOT somewhere else. Now, what..Can’t stop a nose bleed and have uncontrollable menstrual flow just like VWD? Nope.

DIC can be brought on by some terrible illnesses such as sepsis or cancer (boo!) So if anyone ever tells you that diseases are “just in your head”-you will know better now.

Afibrinogenemia- Did a cat walk across someone’s keyboard when naming this thing?

This condition is pretty rare and only affects about 1 in every million people-but let me tell you, they must REALLY feel special with a name like Afibrinogenemia.

Basically what happens here (because we’re doctors now) is the person has literally no fibrinogen in their blood (this stuff helps make clots) , which as you might imagine could lead to things getting pretty bloody pretty quick.

People with afibrinogenaemia can suffer from symptoms such as joint bleeds or even spontaneous bleeds!

Factor X Deficiency- Sounds Like something out of an algebra book

Factor X deficiency seems simple enough-we all remember basic algebra-don’t we?- but that doesn’t mean it won’t make things dicey if/when anything goes awry.

To break it down for those who slept through maths class: Factor X is needed for proper clotting. Everyone knows that! But having too little factor X-all bets are off because there may not be protection against severe bleeds!

People with Factor X Deficiency may experience excessive bleeding after surgeries or maybe during routine dental checks too.Dental pricks aren’t always friendly ladies and gentlemen.

Well, we’ve learned that bleeding isn’t always so simple (duh!) and that there are plenty of rare bleeding disorders out there. We may not be able to pronounce them, but at least we now know they exist!

The moral of the story: If you’re ever in doubt that your blood might be acting funny-speak to an expert pronto before things spiral out of control (or spiral back into control?)